Currently, there are over 150,000 Australians living with Parkinson’s.
Parkinson’s Australia is the national advocacy body for people living with Parkinson’s, their families and carers, researchers and health professionals. We promote the best possible quality of life for people with Parkinson’s.
We advocate for the Parkinson’s community on issues of national significance. We work to reduce the impact of Parkinson’s by promoting best practice care to ensure that people can maximise their opportunities to live well and maintain their independence.
Parkinson’s Australia Core Business
| Core business | Outcome |
| Collate national data on Parkinson’s in Australia for information, submissions and awareness campaigns. | National awareness |
Revise, update and develop new programs targeted at ‘Education of Parkinson’s Specialists’ including:
|
National education for better care and wellbeing
National connection |
| Develop and implement a strategy to educate and inform national politicians through meetings, seminars, functions and lobbying on Parkinson’s issues in Australia. | National awareness |
| National Conference for people affected by Parkinson’s and members of care teams. | National connection
National education for better health and wellbeing |
| Provide reliable and evidence-based information to the Parkinson’s community on symptoms pre-diagnosis and on-going options for living well throughout their Parkinson’s journey. | National education for better health and wellbeing |
| Federal grant submissions, management and delivery of projects such as the Young Onset Parkinson’s eXchange app and website. | National education for better care and wellbeing
National connection |
| Federal budget submissions to fund projects, education, and campaigns. | National health system improvement for better care and wellbeing |
| Develop and maintain strategic partnerships and/or alliances with other national neurological, health and disability organisations, as well as state-based Parkinson’s organisations. | National connection |
| Improve NDIS assessments and primary health assessments, leading to improved supports for people living with Parkinson’s and their carers. | National health system improvement for better care and wellbeing |
| Prepare for and influence federal government policy direction and priorities relevant to Parkinson’s and related disorders. | National awareness
National health system improvement for better care and wellbeing |
| Develop and publish national position papers and policies on issues of significance to the Parkinson’s community. | National awareness
National health system improvement for better care and wellbeing |
State-based organisations
There are 6 state-based Parkinson’s organisations across the country, each independent from each other and from Parkinson’s Australia. To view a full list of state-based organisations, visit our contact page.
Our infoline connects you with the right Parkinson’s support organisation for your state/territory.
What do state-based Parkinson’s support organisations do?
When you call 1800 644 189 you will be connected with the Parkinson’s support organisation in your state/territory. Each state-based organisation is independent from each other and from Parkinson’s Australia. Services and support will vary from state to state.
Information, care and services, can include:
- Parkinson’s peer support groups located in your area or online.
- Finding a Movement Disorder Specialist in your state/territory.
- Finding Allied Health Specialists with an interest in Parkinson’s in your area.
- Therapeutic, recreational and specialised support groups (e.g. art, singing, photography).
- Assistance to access and understand My Aged Care (MAC), Community Home Support Program (CHSP) and the National Disability Insurance Scheme (NDIS).
- State Government lobbying and state-budget submissions for essential services such as Community-based Parkinson’s Nurse Specialists.
- Exercise groups suitable for Parkinson’s.
- Parkinson’s Nurse Specialist services.
- Education events, seminars and conferences face to face and online.
- Community fundraising events such as Walk in the Park, Walk to Fight Parkinson’s.
Donations
Your donation helps us to achieve our core business, to improve the lives of people affected by Parkinson’s in Australia through national advocacy, raising awareness and connecting people living with Parkinson’s, their families and carers, researchers and health professionals in the Parkinson’s community.
