Australian Parkinson’s Genetics Study (APGS)
What is the APGS?
The Australian Parkinson’s Genetics Study (APGS) is a groundbreaking nationwide research project led by the QIMR Berghofer Medical Research Institute in Brisbane. Funded by the Shake It Up Australia Foundation (SIUAF) and The Michael J. Fox Foundation (MJFF), this study is designed to uncover the genetic and environmental factors that contribute to Parkinson’s disease.
By recruiting thousands of participants both with and without Parkinson’s, researchers aim to identify the genes behind the condition and compare lifestyle and environmental differences. This deeper genetic understanding will accelerate the development of new therapies to prevent, slow, stop, and ultimately cure Parkinson’s disease.
Who can participate?
Participation is open to volunteers who meet the following criteria:
- Male or female, of any age
- Diagnosed with and treated for Parkinson’s disease OR do not have Parkinson’s and have no family history of the condition
- Currently residing in Australia
How to get involved
Joining the study is simple and convenient:
- Complete a short questionnaire – it takes about 25 minutes and can be done online, over the phone, or via mail.
- Receive a collection kit – posted directly to your nominated address.
- Provide a saliva sample – use the tube provided, then return it in the prepaid mailer.
Ethics & confidentiality
The QIMR Berghofer Human Research Ethics Committee (P3711) has reviewed and approved the study and its questionnaire. All participation is strictly confidential, and your information will be protected in accordance with Australian regulations.
Learn more
- FAQs: APGS Frequently Asked Questions
- Website: QIMR Berghofer – APGS Study
- Information Sheet: A detailed participant information sheet is available here.
Donations
Your donation helps us to achieve our core business, to improve the lives of people affected by Parkinson’s in Australia through national advocacy, raising awareness and connecting people living with Parkinson’s, their families and carers, researchers and health professionals in the Parkinson’s community.
