Parkinson’s peak body organisations & foundations

Peak body organisations and foundations often have podcasts, webinars and websites that contain good information for people living with Parkinson’s. Please note: Parkinson’s Australia is not liable or responsible for the content or management of third party websites.

The Michael J. Fox Foundation for Parkinson’s Research

The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson’s today.

The MJFF Parkinson’s Podcast

The Parkinson’s Research Podcast: New discoveries in Neuroscience Podcast

American Parkinson Disease Association (APDA)

The APDA is a nationwide grassroots network dedicated to fighting Parkinson’s disease (PD) and works tirelessly to help the approximately one million with PD in the United States live life to the fullest in the face of this chronic neurological disorder.

Brian Grant Foundation (USA)

The Brian Grant Foundation empowers people impacted by Parkinson’s disease to lead active and fulfilling lives. Our mission is to educate people living with PD—and their loved ones—about effective, evidence-based practices that enhance their physical and emotional well-being. We’re also a caring, supportive community that can provide encouragement and inspiration to help you live what’s possible today.

Cure Parkinson’s (UK)

We fund and facilitate research that has the potential to cure Parkinson’s. We’re working with urgency to find new treatments that can slow, stop or reverse the condition.

Davis Phinney Foundation (USA) 

The Davis Phinney Foundation is dedicated to helping people living with Parkinson’s to live well today. Our mission is to help people with Parkinson’s to live well today.

End Parkinson’s

Ending Parkinson’s Disease proposes a bold PACT to:

  • Prevent the disease
  • Advocate for protective policies
  • Care for patients, and
  • Treat the condition with innovative therapies.

The authors gather the expertise of clinicians, patients, and cutting-edge researchers to tell the full story of Parkinson’s and what we can do to end it. As we confront this coming wave of disease, this book is an indispensable guide for patients, families, clinicians, scientists, politicians, and activists.

International Parkinson and Movement Disorder Society

The International Parkinson and Movement Disorder Society (MDS) is a professional society of clinicians, scientists, and other healthcare professionals who are interested in some of the most challenging diseases to diagnose and treat: movement disorders.

Parkinson’s Foundation (USA)

The Parkinson’s Foundation makes life better for people with Parkinson’s disease (PD) by improving care and advancing research toward a cure.

PD Avengers

PD Avengers is a patient-led organization, united in the purpose of ending Parkinson’s disease. We raise awareness, engagement and hope. We add urgency to the cause of ending Parkinson’s disease.

Spark the Night (World Parkinson’s Night Global Initiative)

PMD Alliance (USA)

PMD Alliance is an independent, national (USA) nonprofit on a mission to empower people impacted by movement disorders with the tools and meaningful connections they need to thrive today. They provide free resources to the entire Movement Disorder Care & Support Ecosystem©—to people living with the disease, care partners and adult children, support group leaders, and healthcare providers—because we all do better when everyone’s empowered.

U-Turn Parkinson’s (Canada)

U-Turn Parkinson’s is a wellness centre with a mission to empower people living with Parkinson’s in their pursuit of wellness. They are here to improve people’s quality of life while living with Parkinson’s by offering a variety of accessible in-person classes, online classes and community support.

pre-recorded exercise videos

Young Onset Parkinson’s Network (USA)

The Young Onset Parkinson’s Network (YOPN) was built upon the real-life experience of founder, Anna Grill, who was diagnosed with YOPD at age 38.