Travelling

Before you go

1. Consult your GP: Discuss your travel plans with your neurologist or GP. They can advise you on managing your medication schedule, especially if crossing time zones.
2. Medication: Ensure you carry enough medication for your entire trip, plus a few extra days in case of delays. Inform your GP and pharmacist about your travel plans so they can provide additional prescriptions. Keep medications in their original containers and pack enough in your carry-on bag, with extras in your check-in luggage or partner’s bag. Check for any contraindications if you require travel sickness or other medications.
3. Travel insurance: Ensure your travel insurance covers pre-existing conditions like Parkinson’s. This will provide peace of mind in case of medical emergencies.
4. Medical documentation: Get a letter from your GP detailing your condition, medications, and any special needs. This can be invaluable if you need medical assistance while away.
5. Accommodation: Book accessible accommodation in advance. Request rooms close to elevators or on the ground floor if you have mobility issues. Check if the hotel offers airport shuttles to ease your transit.
6. Rest days: Incorporate rest days into your itinerary to allow for recovery and relaxation.
7. Pack smarter: Use luggage that is easy to handle. Bring a backpack for essential items, keeping needed things accessible during security checks and flights (e.g., charging cords, headphones, meds, water bottle).
8. Embrace technology: Utilise apps like SAM for scheduling medication reminders, Google Translate for language assistance, and use the opportunity to connect with a Parkinson’s support group in your travel area.
9. Companion Card: Apply for a companion card if you qualify, to receive special rates and assistance.
10. Invisible Disability Lanyard: Apply for an Invisible Disabilities Lanyard or check if the airport has Sunflower Lanyards available.

During your trip

1. Stay hydrated: Drink plenty of water to stay hydrated and ensure your medications work effectively. Bring a water bottle and refill as needed. Know where the toilets are (in Australia, you can request a Master Key for public toilets).
2. Stick to your routine: Try to maintain your regular medication schedule and exercise routine as much as possible.
3. Ask for assistance: Don’t hesitate to request help at airports, train stations, restaurants, or hotels. Many places offer special assistance for travellers with disabilities.
4. Pack comfort items: Bring items that make you comfortable, such as a travel pillow, snacks, and entertainment for long journeys.

Minimise stress and anxiety

1. Plan ahead: Detailed planning can reduce uncertainty, anxiety, and stress. Know your itinerary and have backup plans in case of changes.
2. Know requirements: Familiarise yourself with airline, airport, and security requirements for any medical devices you may use, like DBS or pumps, to avoid surprises.
3. Practice relaxation techniques: Techniques like deep breathing, meditation, or yoga can help manage stress and anxiety.
4. Stay connected: Keep in touch with family and friends. Knowing you have a support system can provide comfort.
5. Take breaks: Allow time to rest and recharge, and avoid overexerting yourself with a packed schedule.