If you or someone you know has just been diagnosed with Parkinson's, we're here to connect you to the information you need to live well.
Hearing the words, 'you have Parkinson's' can be overwhelming, especially if you are not given the right information and support from the start. If you have just been diagnosed, or are caring for or supporting someone who has, we have tips for you. Just remember, there are medications and treatments to help manage the symptoms, support services available to help maintain your independence and ways to adjust your lifestyle to continue to enjoy your favourite activities.
Understanding the condition and making a personalised care plan early can make a big difference in how you feel, move and live day to day. Look to NDIS (<65), Support at Home & My Aged Care (>65), Carer Gateway & CarerHelp (for the carers and young carers), as well as palliative care supports as soon as possible.
It's also important to understand that while idiopathic Parkinson's is the most common form, other conditions can mimic its parkinsonism (T.R.A.P.) symptoms. Knowing the difference can help steer the right path forward.
Receiving a diagnosis of Parkinson's Plus, aka Atypical Parkinsonian Disorders, like MSA, CBD/CBS, or PSP can bring a whirlwind of emotions and questions. It's natural to feel uncertain, but with the right knowledge, support, and planning, you can take steps that help you live well.
Many of the same principles that support people living with Parkinson's also apply to atypical conditions. That means building care team, making a personalised care plan, learning how symptoms may progress, staying active, and connecting with the services and supports like NDIS, My Aged Care/Support at Home, and palliative care, can make daily life smoother.
