Resources

Advance care planning is all about thinking ahead when it comes to your health care. It gives you a chance to make decisions now about the care you’d prefer—or prefer not to have—if you become seriously ill and can’t express your wishes or make choices yourself. It’s a way to reflect on, talk about, and write down what’s most important to you regarding your treatment. Advance care planning ensures your loved ones and health care providers understand and respect your preferences.

The need for a connected healthcare system is greater than ever – one that’s accessible, progressive and secure. Digital health is a vital part of a modern, accessible healthcare system designed to meet the needs of all Australians. Discover more about digital health services like My Health Record, my health app, electronic prescriptions and cyber security that can help you in your Parkinson's journey.

Cybercriminals are always looking to access your information for their financial gain. To protect yourself from their malicious tactics, it’s important to stay vigilant and take steps to secure your online activities. When dealing with personal matters online, be aware of suspicious activity, including emails, phone calls or text messages.

You can choose to receive an electronic prescription from your healthcare provider when you next need a prescription, or you can request it to be sent to your Active Script List.

My Health Record is a safe and secure place to keep your key health information available to you, your representatives and your healthcare providers anytime, including in an emergency. You have control over your information that is shared, and can restrict documents from being viewed, as well as choosing which Healthcare organisations can view it at any time.

The NDIS does not specify any formal guideline or template to develop a Carer’s Statement. It could be an informal letter or a structured statement. It can be whatever you choose.

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If you or someone you care for is living with Parkinson’s and aged 65 or older, understanding the aged care system can feel overwhelming. This guide breaks it down into simple steps to help you access the right support at the right time.

Parkinson’s Australia is inviting people living with Parkinson’s or Parkinson’s Plus conditions to take part in a national study using the Patient Activation Measure (PAM®). The PAM® is a clinically validated tool used around the world to measure patient activation, or the skills, knowledge and confidence we each have to manage our health and care.

When you are diagnosed with Parkinson’s under the age of 64 and are an Australian resident you can check your eligibility and apply for support under the National Disability Insurance Scheme (NDIS).

If you are over 65 and living with Parkinson’s, planning ahead for support at home is important. Parkinson’s symptoms can change over time, affecting mobility, balance, communication, swallowing, cognition and everyday activities. Understanding how the Support at Home program works can help you access services sooner and avoid gaps in care.