National Advocacy.
Connection. Awareness.

I have
Parkinson’s

Learn to live well.

Each day up to 50 Australians are diagnosed with Parkinson’s. We work to improve the lives of people affected by Parkinson’s across Australia.

Young Onset Parkinson’s eXchange

The Young Onset Parkinson’s eXchange (YOPX) app and website is a world-first information portal and resource hub supporting people with young onset Parkinson’s. Developed as a living lab model, the app provides people with young onset Parkinson’s information to assist with their NDIS applications and reviews.

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This month, Parkinsons Australia will attend the Accessible Product Design Alliance Meeting on May 10 to discuss key topics that are important to you. 

If you have Parkinsons and are impacted by inaccessible products and packaging, and would like to have your say, click the link to complete a short survey: https://forms.gle/LoN656EUsTud1Ha17

#ParkinsonsAustralia #Parkinsons #RoundtableDiscussion
Roundtable Reminder!

Dont miss your opportunity to connect at the next Virtual Roundtable on 6 May 2024.
 
Our Virtual Roundtables are an opportunity for us to continue our advocacy work and gather information on how Parkinsons affects individuals, carers and families across Australia.

The information gathered will be kept confidential by name, however will be used to build collateral for lobbying the federal government for funding for better support and services, as well as improving education and awareness on a national scale on behalf of everyone affected by Parkinson’s.

Book your spot here -->  https://loom.ly/kD12Kc0

#ParkinsonsAustralia #RoundtableDiscussion #VirtualRoundtable #Advocacy
Thanks to Penny Wong - Senator for SA and Senator Andrew McLachlan CSC for helping us wrap up #ParkinsonsAwarenessMonth with more #advocacy. Craig Gillespie and his daughter shared their thoughts on how we can make the diagnosis journey easier for families like theirs. 

Olivia Nassaris Tina Gillespie @followers Neurological Alliance Australia PD Avengers International Parkinson and Movement Disorder Society ABC Australia
Introducing our first keynote speaker for the upcoming 2025 Parkinsons Australia National Conference - Professor Roger Barker. He is the Professor of Clinical Neuroscience at the University of Cambridge and Consultant Neurologist at Addenbrookes Hospital. 

We are thrilled to have Roger onboard, and look forward to hearing from him at the #PANC2025. Book your earlybird tickets now! --> https://loom.ly/-ZjIcNA

He runs the regional NHS Huntingtons Disease (HD) as well as clinics in Parkinsons Disease (PD) investigating the heterogeneity of these disorders. He is trialing new experimental therapeutics for these conditions including cell and gene therapies as well as drug repurposing. 

#ParkinsonsAustralia #ParkinsonsAustraliaNationalConference #KeySpeaker #Conference