Participate in Research

Would you like to participate in research?

In this section we will post opportunities to participate in research.  All research we support must have sound design methods, and be supported by a Human Research Ethics Committee.  Finally, all researchers agree to provide the results of their research to the community.

6 September 2021

Were you diagnosed with Parkinson’s under the age of 65? 


Are you experiencing pain? 

During national consultations undertaken for the Young Onset Parkinson’s Exchange (YOP-X) Project, pain experiences were highlighted as key areas to consider for further investigation. Studies show that pain is undiagnosed and poorly managed in people with Parkinson’s, and no studies in Australia or internationally have specifically looked at pain experiences for people diagnosed with Parkinson’s under the age of 65. 

Parkinson’s Australia is undertaking a National Pain Consultation for Young Onset Parkinson’s to gather a key set of information focusing on the types of pain, severity, frequency, location of pain, aggravating and easing factors and impact on quality of life for people with young onset Parkinson’s.  

To complete the online survey please click here Pain Survey

For more information, please contact 

10 June 2021


Insights into the experience of pain in Parkinson's Disease

Volunteers with Parkinson’s disease are required for a study looking at pain in people with Parkinson’s disease. The study aims to describe the primary ‘drivers’ (i.e. different characteristics) of the pain experience in people with Parkinson’s disease and ongoing pain. Understanding the magnitude of, each pain ‘driver’ will help guide a more individualised approach to pain management and improve quality of life.


The study involves completing an anonymous survey about the different ‘drivers’ of pain.  The expected time to complete the survey is 30 – 40 minutes.

To take part in the research you must:

  • Be diagnosed with Parkinson’s disease

  • Regularly experience significant pain (i.e. > 3/10 pain severity (on a scale from 0 to 10, where 0 is no pain and 10 is extreme pain) on more than 2 days per week in the prior 3 months)

This study is being conducted by a team of researchers from the University of Sydney, led by Dr Natalie Allen. Vanessa Nguy is conducting this study as the basis for the degree of Doctor of Philosophy at the University of

The survey can be completed online or you may request a paper copy. If you would like to complete an online survey please click the button below for further information and to access the survey.  If you would like to request a paper survey or have further questions, please email Vanessa Nguy (

8 June 2021

Combining memantine and cholinesterase inhibitors in Lewy body dementia

Australian researchers are collaborating on an international research project jointly funded by the United Kingdom’s National Institute for Health Research and Australia’s National Health Medical Research Council.  They are looking for people living with Parkinson’s disease dementia, as well as those who care for them, who might be interested in joining their advisory committee.  Click below to view the information leaflet.