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Participate in Research / Surveys
Would you like to participate in research?
In this section we will post opportunities to participate in research and surveys. All research we support must have sound design methods, and be supported by a Human Research Ethics Committee. Finally, all researchers agree to provide the results of their research to the community.
19 December 2022
Sharing your experiences of Parkinson's and the value of advanced treatment options
AbbVie Australia Pty Ltd have commissioned a research study aiming to understand how Parkinson's disease is affecting people living with the condition, their families, communities, and society. The study is looking to
identify people living with or involved in the care of Parkinson’s disease to provide their
perspective and experiences.
To find out more about this study and how to take part, click here
24 October 2022
The Effects of Computerised Cognitive Training of Executive Functioning on Emotion Regulation
The University of Reading in the UK are recruiting participants for a study investigating the effects of a computerised cognitive raining intervention targeting working memory on emotion regulation ability in individuals with Parkinson's. To date they have recruited participants through Parkinson's UK, however are now extending their study to other countries. This is an online study.
To find out more, the information sheet can be viewed here and the invitation to participate here
This application has been reviewed by the University of Reading Research Ethics Committee and has been given a favourable ethical opinion for conduct.
24 October 2022
Flourishing in the Face of Parkinson's
It’s Not Funny recently partnered up with Dr. Neil Bretana (public health researcher at the University of South Australia) to launch a survey . The intent is to explore the following question: is possible to lead a good life, even flourish (as the ancient Greeks would say) while living with Parkinson’s – and draws on existing literature in salutogenesis, positive health & well-being.
The survey takes less than 5 minutes to complete and anyone can take part. Click on the button below to be redirected to the survey
4 August 2022
Mood and Motivation Survey
Many people living with Parkinson’s experience changes in mood and motivation. These changes are also common in older adults. It is unclear how common these changes are, and how best to identify them.
To help answer these questions, researchers at Flinders University are looking for:
1. People with a diagnosis of Parkinson’s and a support person; and
2. People without a diagnosis of Parkinson’s (age 50+ years)
Study participation will involve completing a set of online surveys about your experience of changes in mood and motivation, and your general health and background. We will also ask your support person to complete a set of surveys. To participate, you must be fluent in English and have access to a computer with internet and email. The study will take 30-40 minutes.
3 August 2022
Australian Parkinson's Mission (APM) Clinical Trials
In 2019 the Australian Parkinson's Mission received $30 million in Federal funding from the Medical Research Future Fund (MRFF) to slow and stop the progression of Parkinson’s. This funding is being used to conduct an Australian clinical trials program using repurposed drugs (potentially disease modifying drugs that could slow, stop or reverse Parkinson’s progression), integrated with transformative research, to identify and fast-track effective treatments for people with Parkinson’s. The program is running over 5 years.
The APM clinical trial (APM001) is open for participant enrolment and recruitment. To determine whether you are eligible to participate in the clinical trial, or to find out more, click the button below
21 June 2022
Understanding Self-care Practices in Parkinson's: A Survey Study
Researchers at Monash University are conducting an anonymous survey study aiming to understand self-care practices of people with Parkinson's
Read more here , view the information flyer here, or click the button below to take part in the survey
11 April 2022
Australian Parkinson's Genetic Study
Researchers at the QIMR Berghofer Medical Research Institute, with funding from the Shake It Up Australia Foundation and The Michael J. Fox Foundation, are undertaking ground-breaking research to help identify genetic factors influencing risk of developing Parkinson’s. Click the button below to take part in the survey.