Participate in Research

Would you like to participate in research?

In this section we will post opportunities to participate in research.  All research we support must have sound design methods, and be supported by a Human Research Ethics Committee.  Finally, all researchers agree to provide the results of their research to the community.

2 March 2022

Driving With Parkinson's National Survey

 

A call-out for anyone of any age with Parkinson's who is still driving or no longer driving.

During national consultations undertaken for the Young Onset Parkinson’s Exchange (YOP-X), driving experiences were highlighted as an area to consider for further investigation. Current information on driving with Parkinson’s in Australia and internationally can assume that Parkinson's is a condition for older people for whom driving may no longer be a priority. Members of the Young Onset Parkinson’s Working Group have developed a list of topic areas around driving safely and maintaining independence, and additional information collected through this short survey will form the basis of a new driving resource for people with Parkinson’s. 

 

To complete the online survey please click the button below.

 

For more information, please contact Katie at khawtin@hospitalresearch.org.au

 

 

 

6 September 2021

Were you diagnosed with Parkinson’s under the age of 65? 

 

Are you experiencing pain? 

During national consultations undertaken for the Young Onset Parkinson’s Exchange (YOP-X) Project, pain experiences were highlighted as key areas to consider for further investigation. Studies show that pain is undiagnosed and poorly managed in people with Parkinson’s, and no studies in Australia or internationally have specifically looked at pain experiences for people diagnosed with Parkinson’s under the age of 65. 

Parkinson’s Australia is undertaking a National Pain Consultation for Young Onset Parkinson’s to gather a key set of information focusing on the types of pain, severity, frequency, location of pain, aggravating and easing factors and impact on quality of life for people with young onset Parkinson’s.  

To complete the online survey please click the button below.

For more information, please contact Katie at khawtin@hospitalresearch.org.au

8 June 2021

Combining memantine and cholinesterase inhibitors in Lewy body dementia

Australian researchers are collaborating on an international research project jointly funded by the United Kingdom’s National Institute for Health Research and Australia’s National Health Medical Research Council.  They are looking for people living with Parkinson’s disease dementia, as well as those who care for them, who might be interested in joining their advisory committee.  Click below to view the information leaflet.